Association Cases

Children with heart conditions and other complex health problems we help through your donations

Our Mission

Special Hearts Association is dedicated to supporting children with congenital heart conditions, as well as other complex health problems, and their families. Through our programs, we provide medical, emotional, and financial support for these families facing extraordinary challenges.

The Association was born from the fight for Maria's life and from the mobilization of people who believed in her chance. Maria remains the beginning of the story, and the help she received becomes the foundation of a wider mission: the good Maria received should not stop with Maria.

Every donation matters and can make the difference between life and death for these children with special hearts. Through your generosity, we manage to offer hope and real chances of healing to families in need.

Current Cases

The children we support, with their families' consent: the medical condition, the concrete need and the help provided.

Maria Natalia

Where it all began

2 years and 9 months old

Ongoing

Medical condition

Pulmonary Atresia, Hypoplastic Left Heart Syndrome, ZTTK Genetic Syndrome

Maria has successfully gone through both stages of the Boston treatment: the left ventricle growth-stimulation surgery (September 2025) and the biventricular correction (2026). Her journey continues with long-term cardiology monitoring, follow-ups in Boston and recovery.

Concrete need

Long-term cardiology monitoring, follow-ups in Boston and rehabilitation therapies; another cardiac intervention in the coming years.

Last update: September 2026

Read Maria's story

Delia Maria G.

6 years old

Completed

Medical condition

Developmental delay with autism-like features, hyperkinetic disorder with attention deficit, congenital macrocephaly and a genetic variant of uncertain significance in the TRAF7 gene

Delia Maria needs further investigations to better understand the cause of her developmental delay, both in Romania and at a specialised centre in Turkey. The repeated trips and the logistics of these investigations are a heavy burden for the family, and we wanted this not to be an obstacle.

Concrete need

Further investigations in Romania and in Turkey, including transport.

Last update: June 17, 2026

Maria Sofia N.

9 years old

Ongoing

Medical condition

Congenital myopathy, a rare genetic neuromuscular disease

Maria Sofia lives with a rare genetic neuromuscular disease that weakens her muscles and requires a lot of constant physiotherapy. Her therapies continue, and spinal surgeries lie ahead in the coming period. As far as we can, we will keep standing by her.

Concrete need

Sustained physiotherapy, followed by spinal surgeries.

Last update: June 18, 2026

Selena Maria B.

2 years and 3 months old

Ongoing

Medical condition

FOXL2 syndrome (blepharophimosis, ptosis and epicanthus inversus), a rare genetic condition of the eyelids

Selena Maria needs corrective surgery on both eyes at a specialised clinic in Barcelona, Spain. Her parents have started a fundraising campaign to cover the cost of the procedure, and we wanted to stand by them on this road.

Concrete need

Corrective surgery on both eyes in Barcelona, Spain.

Last update: June 29, 2026

David V.

4 years old

Ongoing

Medical condition

Spastic tetraparesis and microcephaly

David needs a great deal of rehabilitation therapy in order to manage, step by step, to walk on his own. Every session counts, and keeping the therapies going is essential for his progress.

Concrete need

Intensive, long-term rehabilitation therapies.

Last update: August 16, 2026

Ștefan C.

5 years old

Ongoing

Medical condition

Autism spectrum disorder and severe intellectual disability

Ștefan needs detailed investigations at the Vivere Neuroimmunology Clinic in Kyiv, to better understand the causes and find the most suitable ways to help him. On top of the cost of the investigations, the family also has to cover the trip and the logistics, and we wanted to help them get there.

Concrete need

Detailed investigations at the Vivere Neuroimmunology Clinic in Kyiv, together with transport and logistics costs.

Public posts

Facebook post

Last update: September 12, 2026

Ilinca N.

8 years old

Ongoing

Medical condition

Epidermolysis bullosa and a long, filiform oesophageal stricture

Ilinca lives with epidermolysis bullosa, a rare disease that makes her skin extremely fragile: the wounds on her body need special dressings every single day. There is no cure, and the dressings and medical supplies are extremely expensive and must be provided constantly.

Concrete need

Dressings and medical supplies for the wounds caused by the disease, needed daily.

Public posts

Facebook post

Last update: September 14, 2026

Our new case

Coming soon...

Under evaluation

We publish the stories of the children we support once the families agree and all the information has been validated. The next case will appear here soon.

How can you help?

Donations support the Association's activity: Maria's monitoring and recovery, as well as the children we help further. If you want your donation to reach a specific case, write to us and we will tell you how it can be directed.

ASOCIAȚIA INIMI SPECIALETax ID: 51427430